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An
edited version of the following article appeared in The Ottawa Citizen
on Saturday, July 21, 2001
A
very disabled-friendly town
Mike
Nemesvary
'Round the World Challenge
Mike Nemesvary,
a former champion freestyle skier, is attempting to become the first quadriplegic
to drive around the world - a 40,000 kilometer trek to raise funds for
spinal cord injury research and rehabilitation.
Exmouth, Australia
Throughout my travels, I have attempted to meet other similarly disabled
people in their homes and communities to get a better sense of the accessibility
issues and attitudes they face in their day-to-day lives.
I regret that, despite my best efforts, I was unable to meet with many
quadriplegics in the Middle East and India outside of the rehabilitation
centres I visited. In many parts of these countries, quads are more likely
to be confined to hospitals and rehab centres, or rarely able to leave
their homes, or even hidden away by families, whose religious beliefs
tell them that their son's or daughter's paralysis is atonement for sins.
The disabled people I did meet were mostly paraplegic. I don't want to
minimize the effects of paraplegia but there is a world of difference
between paraplegia and quadriplegia and, even within these categories,
the effects vary from one person to the next. Christopher Reeve has the
highest level of quadriplegia possible and requires a ventilator to breathe.
My injury fortunately (fortune is all relative!) occurred slightly lower
so that I can breathe on my own but have no function below the nipple
line.
Nevertheless, I am often mistaken for a paraplegic, due in part to the
technology that has allowed me to drive as well as the way in which I
present myself. As a former athlete, it remains a priority to keep those
parts that do still work as fit as possible and when I'm at home in Ottawa,
I regularly work out to build up the muscles in my neck, shoulders and
biceps. This has helped me to maintain relatively good posture and gives
me the energy to do all that I do.
I also use a lot of arm gesturing when I talk which is quite unusual
with quads. What most people don't realize is that the movement is generated
from my biceps alone. It is often only when someone shakes my hand that
they realize the extent of my disability.
So, here in Australia - a country very supportive of their disabled -
it was a real pleasure to finally meet people like Cory Cooper, who has
virtually the same injuries as mine.
Cory has been a quad for 12 years. At the age of 17, he dove into some
shallow water at the beach and, like me, suffered a C4/5 injury. It was
very interesting to meet someone with the exact same injury as myself
with a mirror image of our mobility levels - I am stronger on my right
arm and Cory is stronger on his left.
We met Cory in Exmouth - a lovely small tourist town on the North West
Cape of Western Australia, known for whale and shark watching. Exmouth
was virtually wiped out by a tropical cyclone in 1999 and is just now
starting to build itself back up and is doing so in a very disabled-friendly
way.
This is an amazing town that has actually made itself accessible for
Cory, including supplying Cory with a custom built house complete with
his required mobility modifications. If Cory had a requirement for a vehicle,
the government would likely provide the funding for the vehicle and the
modifications required for him to drive it.
But while we are happily meeting interesting people and discovering better
accessibility in Australia, we have not left our driving challenges behind.
The Australian roads are straight and flat and one can travel for 30 minutes
or more without a bend or a rise in the road - this type of driving is
actually far more mentally challenging than the winding, difficult roads
of the Iran, Pakistan and India.
Night driving in Australia is also quite dangerous. Given that most of
the wildlife is nocturnal, the roadways become a maze of kangaroo clusters
and road kill and we have again decided not to risk driving at night.
And, finally, while we had hoped to be in Darwin by now, we are again
delayed by more needed repairs to my old 1991 "beast" -- the
rough driving conditions of Iran, Pakistan and India have taken their
toll. The challenge continues...
For more information,
visit www.roundtheworldchallenge.com
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